dc.contributor.author | Armstrong, M | en_US |
dc.contributor.author | Tuijt, R | en_US |
dc.contributor.author | Read, J | en_US |
dc.contributor.author | Pigott, J | en_US |
dc.contributor.author | Davies, N | en_US |
dc.contributor.author | Manthorpe, J | en_US |
dc.contributor.author | Frost, R | en_US |
dc.contributor.author | Schrag, A | en_US |
dc.contributor.author | Walters, K | en_US |
dc.date.accessioned | 2024-08-12T11:05:12Z | |
dc.date.available | 2021-11-19 | en_US |
dc.date.issued | 2021-12-15 | en_US |
dc.identifier.uri | https://qmro.qmul.ac.uk/xmlui/handle/123456789/98764 | |
dc.description.abstract | BACKGROUND: Parkinson's disease is a long-term, complex health condition. To improve or maintain quality of life, people with Parkinson's can have an active involvement in their care through self-management techniques. Given the complexity and individualization of self-management, people with Parkinson's will need support and encouragement from their healthcare professionals (HCPs). Despite the key role HCPs have in this, research has seldom explored their perspectives and understanding of self-management for people with Parkinson's. METHODS: Multi-disciplinary teams providing care for people with Parkinson's across London, Coventry and Hertfordshire were approached and took part in either one of four focus groups or individual interviews. Forty-two HCPs, including a range of specialist doctors, general practitioners, allied health professionals, nurses, and social workers, took part in this study. Interviews were transcribed and analysed using thematic analysis to identify themes. RESULTS: Four themes were developed from the data: 1) Empowerment of patients through holistic care and being person-centred; 2) Maximising motivation and capability for patients, for example using asset based approaches and increasing opportunities; 3) importance of empowerment of carers to support self-management and 4) contextual barriers to self-management such as the social context. CONCLUSIONS: This study is the first to explore the perspectives of HCPs on self-management in people with Parkinson's. Our findings have identified important considerations surrounding empowerment, motivation, carers and contextual barriers to better understand how we enable effective self-management techniques in people with Parkinson's. Research should build on these findings on to develop acceptable and effective self-management tools for use in practice with people affected by Parkinson's. | en_US |
dc.format.extent | 706 - ? | en_US |
dc.language | eng | en_US |
dc.relation.ispartof | BMC Geriatr | en_US |
dc.rights | This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data. | |
dc.subject | Parkinson’s | en_US |
dc.subject | Qualitative | en_US |
dc.subject | Self-management | en_US |
dc.subject | Thematic analysis | en_US |
dc.subject | General Practitioners | en_US |
dc.subject | Humans | en_US |
dc.subject | Parkinson Disease | en_US |
dc.subject | Qualitative Research | en_US |
dc.subject | Quality of Life | en_US |
dc.subject | Self-Management | en_US |
dc.subject | United Kingdom | en_US |
dc.title | Health care professionals' perspectives on self-management for people with Parkinson's: qualitative findings from a UK study. | en_US |
dc.type | Article | |
dc.rights.holder | © The Author(s) 2021. | |
dc.identifier.doi | 10.1186/s12877-021-02678-w | en_US |
pubs.author-url | https://www.ncbi.nlm.nih.gov/pubmed/34911497 | en_US |
pubs.issue | 1 | en_US |
pubs.notes | Not known | en_US |
pubs.publication-status | Published online | en_US |
pubs.volume | 21 | en_US |
dcterms.dateAccepted | 2021-11-19 | en_US |
rioxxterms.funder | Default funder | en_US |
rioxxterms.identifier.project | Default project | en_US |