dc.contributor.author | Ruth, ECE | |
dc.contributor.author | Harriet, W | |
dc.contributor.author | Jo, W | |
dc.contributor.author | Brian, DN | |
dc.contributor.author | Thomas, R | |
dc.contributor.author | Carolynn, G | |
dc.contributor.author | Debs, S | |
dc.contributor.author | Scott, SE | |
dc.date.accessioned | 2024-06-24T09:58:59Z | |
dc.date.available | 2024-06-24T09:58:59Z | |
dc.date.issued | 2024-06-10 | |
dc.identifier.citation | Ruth E.C. Evans, Harriet Watson, Jo Waller, Brian D. Nicholson, Thomas Round, Carolynn Gildea, Debs Smith, Suzanne E. Scott, Advice after urgent suspected cancer referral when cancer is not found in England: Survey of patients’ preferences and perceived acceptability, Preventive Medicine Reports, Volume 43, 2024, 102781, ISSN 2211-3355, https://doi.org/10.1016/j.pmedr.2024.102781. (https://www.sciencedirect.com/science/article/pii/S2211335524001967) Abstract: Objective No standardised approach exists to provide advice after urgent suspected cancer (USC) referral when cancer is not found. This study aimed to assess preferences and acceptability of receiving advice after USC referral related to: 1) managing ongoing symptoms, 2) responding to early symptoms of other cancers, 3) cancer screening, 4) reducing risks of future cancer. Methods 2,541 patients from two English NHS Trusts were mailed a survey 1–3 months after having no cancer found following urgent suspected gastrointestinal or head and neck cancer referral. Participants were asked about: willingness to receive advice; prospective acceptability; preferences related to mode, timing and who should provide advice; and previous advice receipt. Results 406 patients responded (16.0%) with 397 in the final analyses. Few participants had previously received advice, yet most were willing to. Willingness varied by type of advice: fewer were willing to receive advice about early symptoms of other cancers (88.9%) than advice related to ongoing symptoms (94.3%). Acceptability was relatively high for all advice types. Reducing the risk of future cancer advice was more acceptable. Acceptability was lower in those from ethnic minority groups, and with lower levels of education. Most participants preferred to receive advice from a doctor; with results or soon after; either face to face or via the telephone. Conclusions There is a potential unmet need for advice after USC referral when no cancer is found. Equitable intervention design should focus on increasing acceptability for people from ethnic minority groups and those with lower levels of education. Keywords: Cancer; Neoplasm; Early Diagnosis; Early Detection; Cancer Screening; Opportunistic intervention; Patient Survey; Health promotion; Public Health | en_US |
dc.identifier.issn | 2211-3355 | |
dc.identifier.uri | https://qmro.qmul.ac.uk/xmlui/handle/123456789/97631 | |
dc.description.abstract | Objective
No standardised approach exists to provide advice after urgent suspected cancer (USC) referral when cancer is not found. This study aimed to assess preferences and acceptability of receiving advice after USC referral related to: 1) managing ongoing symptoms, 2) responding to early symptoms of other cancers, 3) cancer screening, 4) reducing risks of future cancer.
Methods
2,541 patients from two English NHS Trusts were mailed a survey 1–3 months after having no cancer found following urgent suspected gastrointestinal or head and neck cancer referral. Participants were asked about: willingness to receive advice; prospective acceptability; preferences related to mode, timing and who should provide advice; and previous advice receipt.
Results
406 patients responded (16.0%) with 397 in the final analyses. Few participants had previously received advice, yet most were willing to. Willingness varied by type of advice: fewer were willing to receive advice about early symptoms of other cancers (88.9%) than advice related to ongoing symptoms (94.3%). Acceptability was relatively high for all advice types. Reducing the risk of future cancer advice was more acceptable. Acceptability was lower in those from ethnic minority groups, and with lower levels of education. Most participants preferred to receive advice from a doctor; with results or soon after; either face to face or via the telephone.
Conclusions
There is a potential unmet need for advice after USC referral when no cancer is found. Equitable intervention design should focus on increasing acceptability for people from ethnic minority groups and those with lower levels of education. | en_US |
dc.format.extent | 102781 - ? | |
dc.publisher | Elsevier | en_US |
dc.relation.ispartof | Preventive Medicine Reports | |
dc.rights | This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/). | |
dc.subject | Clinical Research | en_US |
dc.subject | Rare Diseases | en_US |
dc.subject | Cancer | en_US |
dc.subject | Prevention | en_US |
dc.subject | Cancer | en_US |
dc.title | Advice after urgent suspected cancer referral when cancer is not found in England: Survey of patients’ preferences and perceived acceptability | en_US |
dc.type | Article | en_US |
dc.rights.holder | © 2024 The Author(s). Published by Elsevier Inc. | |
dc.identifier.doi | 10.1016/j.pmedr.2024.102781 | |
pubs.notes | Not known | en_US |
pubs.volume | 43 | en_US |
rioxxterms.funder | Default funder | en_US |
rioxxterms.identifier.project | Default project | en_US |
qmul.funder | CanTest- Cancer diagnostic testing in primary care.::Cancer Research UK | en_US |