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QALYs and Rare Diseases: exploring the responsiveness of SF-6D, EQ-5D-5L and AQoL-8D following genomic testing for childhood and adult-onset rare genetic conditions in Australia

dc.contributor.authorPan, T
dc.contributor.authorWu, Y
dc.contributor.authorBuchanan, J
dc.contributor.authorGoranitis, I
dc.date.accessioned2023-12-11T14:11:55Z
dc.date.available2023-12-02
dc.date.available2023-12-11T14:11:55Z
dc.identifier.issn1477-7525
dc.identifier.urihttps://qmro.qmul.ac.uk/xmlui/handle/123456789/92798
dc.publisherBioMed Centralen_US
dc.relation.ispartofHealth and Quality of Life Outcomes
dc.rightsThis is an open access article distributed under the terms of the Creative Commons CC BY license, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
dc.titleQALYs and Rare Diseases: exploring the responsiveness of SF-6D, EQ-5D-5L and AQoL-8D following genomic testing for childhood and adult-onset rare genetic conditions in Australiaen_US
dc.typeArticleen_US
dc.rights.holderCopyright © 2023, The Author(s)
pubs.notesNot knownen_US
pubs.publication-statusAccepteden_US
dcterms.dateAccepted2023-12-02


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