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dc.contributor.authorMcKevitt, Cen_US
dc.contributor.authorFudge, Nen_US
dc.contributor.authorRedfern, Jen_US
dc.contributor.authorSheldenkar, Aen_US
dc.contributor.authorCrichton, Sen_US
dc.contributor.authorRudd, ARen_US
dc.contributor.authorForster, Aen_US
dc.contributor.authorYoung, Jen_US
dc.contributor.authorNazareth, Ien_US
dc.contributor.authorSilver, LEen_US
dc.contributor.authorRothwell, PMen_US
dc.contributor.authorWolfe, CDAen_US
dc.date.accessioned2020-04-22T12:15:54Z
dc.date.issued2011-05en_US
dc.identifier.urihttps://qmro.qmul.ac.uk/xmlui/handle/123456789/63685
dc.description.abstractBACKGROUND AND PURPOSE: Development of interventions to manage patients with stroke after discharge from the hospital requires estimates of need. This study estimates the prevalence of self-reported need in community-dwelling stroke survivors across the United Kingdom. METHODS: We conducted a survey of stroke survivors 1 to 5 years poststroke recruited through Medical Research Council General Practice Research Framework general practices and 2 population-based stroke registers. Levels and type of need were calculated with comparisons among sociodemographic groups, disability level, and cognitive status using the χ2 test or Fisher exact test, as appropriate. RESULTS: From 1251 participants, response rates were 60% (national sample) and 78% (population registers sample) with few differences in levels of reported need between the 2 samples. Over half (51%) reported no unmet needs; among the remainder, the median number of unmet needs was 3 (range, 1 to 13). Proportions reporting unmet clinical needs ranged from 15% to 59%; 54% reported an unmet need for stroke information; 52% reported reduction in or loss of work activities, significantly more from black ethnic groups (P=0.006); 18% reported a loss in income and 31% an increase in expenses with differences by age, ethnic group, and deprivation score. In multivariable analysis, ethnicity (P=0.032) and disability (P=0.014) were associated with total number of unmet needs. CONCLUSIONS: Multiple long-term clinical and social needs remain unmet long after incident stroke. Higher levels of unmet need were reported by people with disabilities, from ethnic minority groups, and from those living in the most deprived areas. Development and testing of novel methods to meet unmet needs are required.en_US
dc.description.sponsorshipThe Stroke Survivor Needs Survey is funded by The Stroke Association; C.D.A.W. acknowledges financial support from the Department of Health through the National Institute for Health Research (NIHR) Biomedical Research Centre award to Guy's & St Thomas' National Health Services (NHS) Foundation Trust in partnership with King's College London. C.D.A.W. is an NIHR Senior Investigator. A.R.R. is funded by the Guy's & St Thomas' NHS Trust Academic Health Sciences Centre Planned Activities (AHSC PA) Scheme. The South London Stroke Register is funded by the Northern & Yorkshire NHS R&D Programme in Cardiovascular Disease and Stroke, Guy's and St Thomas' Hospital Charity, Stanley Thomas Johnson Foundation, The Stroke Association, Department of Health Healthcare Quality Improvement Partnership grant, and a National Institute for Health Research Programme Grant (RP-PG-0407-10184). The Oxford Vascular Study is funded by the UK Medical Research Council, the Dunhill Medical Trust, the Stroke Association, the Bupa Foundation, the NIHR, the Thames Valley Primary Care Research Partnership, and the NIHR Biomedical Research Centre, Oxford.en_US
dc.format.extent1398 - 1403en_US
dc.languageengen_US
dc.language.isoenen_US
dc.relation.ispartofStrokeen_US
dc.rightsAll rights reserved
dc.subjectAge Factorsen_US
dc.subjectAgeden_US
dc.subjectAged, 80 and overen_US
dc.subjectCognitionen_US
dc.subjectContinental Population Groupsen_US
dc.subjectCross-Sectional Studiesen_US
dc.subjectDisability Evaluationen_US
dc.subjectFemaleen_US
dc.subjectHealth Surveysen_US
dc.subjectHumansen_US
dc.subjectLong-Term Careen_US
dc.subjectMaleen_US
dc.subjectMiddle Ageden_US
dc.subjectSelf Reporten_US
dc.subjectSocial Classen_US
dc.subjectStrokeen_US
dc.subjectStroke Rehabilitationen_US
dc.subjectUnited Kingdomen_US
dc.titleSelf-reported long-term needs after stroke.en_US
dc.typeArticle
dc.rights.holder2011 American Heart Association, Inc
dc.identifier.doi10.1161/STROKEAHA.110.598839en_US
pubs.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/21441153en_US
pubs.issue5en_US
pubs.notesNot knownen_US
pubs.publication-statusPublisheden_US
pubs.volume42en_US
rioxxterms.funderDefault funderen_US
rioxxterms.identifier.projectDefault projecten_US


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