dc.contributor.author | Greenhalgh, T | en_US |
dc.contributor.author | Collard, A | en_US |
dc.contributor.author | Campbell-Richards, D | en_US |
dc.contributor.author | Vijayaraghavan, S | en_US |
dc.contributor.author | Malik, F | en_US |
dc.contributor.author | Morris, J | en_US |
dc.contributor.author | Claydon, A | en_US |
dc.date.accessioned | 2011-10-27T08:45:54Z | |
dc.date.issued | 2011-01 | en_US |
dc.identifier.issn | 1355-8196 | en_US |
dc.identifier.uri | http://qmro.qmul.ac.uk/xmlui/handle/123456789/2227 | |
dc.description.abstract | Objectives:
To analyse the narratives of people with diabetes to inform the design of culturally congruent self-management education programmes.
Methods:
The study was based on quasi-naturalistic story-gathering; i.e. making real-time field notes of stories shared spontaneously in diabetes self-management education groups in a socioeconomically deprived London borough. Eighty-two adults aged 25-86, from six minority ethnic groups who were in the intervention arm of a randomized controlled trial of story-sharing, participated. Stories were translated in real time by the facilitator or group members. Ethnographic field notes were transcribed, and analysed thematically (to identify self-management domains raised by participants) and interpretively for over-arching storylines (i.e. considering how self-management domains were contextualized and made meaningful in personal narratives). Analysis was informed by both biomedical and sociological theories of self-management.
Results:
People with diabetes identified seven self-management domains: knowledge; diet; exercise; medication; foot care; self-monitoring; and attending check-ups. Interpretive analysis revealed eight illness storylines within which these practical issues acquired social meaning and moral worth: becoming sick; rebuilding spoiled identity; becoming a practitioner of self-management; living a disciplined and balanced life; mobilizing a care network; navigating and negotiating in the health care system; managing the micro-morality of self-management ‘choices’; and taking collective action.
Conclusion:
Living with diabetes involves both medically recommended behaviours and complex biographical work to make sense of and cope with illness. Self-management education programmes should take closer account of over-arching storylines that pattern experience of chronic illness and recognize that some elements of self-management knowledge cannot be pre-specified in a structured curriculum. | |
dc.format.extent | 37 - 43 | en_US |
dc.relation.ispartof | J HEALTH SERV RES PO | en_US |
dc.subject | BRITISH BANGLADESHIS | en_US |
dc.subject | HEALTH-CARE | en_US |
dc.subject | INTERVENTION | en_US |
dc.subject | PERSPECTIVES | en_US |
dc.subject | PREVENTION | en_US |
dc.subject | EDUCATION | en_US |
dc.subject | ILLNESS | en_US |
dc.title | Storylines of self-management: narratives of people with diabetes from a multiethnic inner city population | en_US |
dc.type | Article | |
dc.rights.holder | Copyright © 2018 by SAGE Publications | |
dc.identifier.doi | 10.1258/jhsrp.2010.009160 | en_US |
pubs.issue | 1 | en_US |
pubs.notes | Not known | en_US |
pubs.volume | 16 | en_US |