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dc.contributor.authorMathur, Ren_US
dc.contributor.authorBhaskaran, Ken_US
dc.contributor.authorChaturvedi, Nen_US
dc.contributor.authorLeon, DAen_US
dc.contributor.authorvanStaa, Ten_US
dc.contributor.authorGrundy, Een_US
dc.contributor.authorSmeeth, Len_US
dc.date.accessioned2016-08-05T12:47:11Z
dc.date.issued2014-12en_US
dc.date.submitted2016-07-13T11:32:44.736Z
dc.identifier.urihttp://qmro.qmul.ac.uk/xmlui/handle/123456789/13888
dc.description.abstractBACKGROUND: Ethnicity recording across the National Health Service (NHS) has improved dramatically over the past decade. This study profiles the completeness, consistency and representativeness of routinely collected ethnicity data in both primary care and hospital settings. METHODS: Completeness and consistency of ethnicity recording was examined in the Clinical Practice Research Datalink (CPRD) and Hospital Episode Statistics (HES), and the ethnic breakdown of the CPRD was compared with that of the 2011 UK censuses. RESULTS: 27.1% of all patients in the CPRD (1990-2012) have ethnicity recorded. This proportion rises to 78.3% for patients registered since April 2006. The ethnic breakdown of the CPRD is comparable to the UK censuses. 79.4% of HES inpatients, 46.8% of outpatients and 26.8% of A&E patients had their ethnicity recorded. Amongst those with ethnicity recorded on >1 occasion, consistency was over 90% in all data sets except for HES inpatients. Combining CPRD and HES increased completeness to 97%, with 85% of patients having the same ethnicity recorded in both databases. CONCLUSIONS: Using CPRD ethnicity from 2006 onwards maximizes completeness and comparability with the UK population. High concordance within and across NHS sources suggests these data are of high value when examining the continuum of care. Poor completeness and consistency of A&E and outpatient data render these sources unreliable.en_US
dc.description.sponsorshipThis work was supported by a +3 award from the Economic and Social Research Council (ESRC) for Rohini Mathur via the Pathways node of the National Centre for Research Methods. Liam Smeeth is supported by a Wellcome Trust Senior Clinical Fellowship. Krishnan Bhaskaran is supported by a postdoctoral fellowship from the National Institute for Health Research. Emily Grundy is partially supported by the ESRC NCRM Pathways node (grant reference ES/I025561/2). Funding to pay the Open Access publication charges for this article was provided jointly by the Wellcome Trust and the ESRC.en_US
dc.format.extent684 - 692en_US
dc.languageengen_US
dc.relation.ispartofJ Public Health (Oxf)en_US
dc.rights© The Author 2013. Published by Oxford University Press on behalf of Faculty of Public Health. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/3.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
dc.subjectepidemiologyen_US
dc.subjectethnicityen_US
dc.subjectmethodsen_US
dc.subjectData Collectionen_US
dc.subjectDatabases, Factualen_US
dc.subjectEthnic Groupsen_US
dc.subjectHospital Information Systemsen_US
dc.subjectHospitalsen_US
dc.subjectHumansen_US
dc.subjectInpatientsen_US
dc.subjectMedical Recordsen_US
dc.subjectNational Health Programsen_US
dc.subjectOutpatientsen_US
dc.subjectPrimary Health Careen_US
dc.subjectUnited Kingdomen_US
dc.titleCompleteness and usability of ethnicity data in UK-based primary care and hospital databases.en_US
dc.typeArticle
dc.identifier.doi10.1093/pubmed/fdt116en_US
pubs.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/24323951en_US
pubs.issue4en_US
pubs.notesNo embargoen_US
pubs.publication-statusPublisheden_US
pubs.volume36en_US


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