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    Completeness and usability of ethnicity data in UK-based primary care and hospital databases. 
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    Completeness and usability of ethnicity data in UK-based primary care and hospital databases.

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    Published version (205.4Kb)
    Volume
    36
    Pagination
    684 - 692
    DOI
    10.1093/pubmed/fdt116
    Journal
    J Public Health (Oxf)
    Issue
    4
    Metadata
    Show full item record
    Abstract
    BACKGROUND: Ethnicity recording across the National Health Service (NHS) has improved dramatically over the past decade. This study profiles the completeness, consistency and representativeness of routinely collected ethnicity data in both primary care and hospital settings. METHODS: Completeness and consistency of ethnicity recording was examined in the Clinical Practice Research Datalink (CPRD) and Hospital Episode Statistics (HES), and the ethnic breakdown of the CPRD was compared with that of the 2011 UK censuses. RESULTS: 27.1% of all patients in the CPRD (1990-2012) have ethnicity recorded. This proportion rises to 78.3% for patients registered since April 2006. The ethnic breakdown of the CPRD is comparable to the UK censuses. 79.4% of HES inpatients, 46.8% of outpatients and 26.8% of A&E patients had their ethnicity recorded. Amongst those with ethnicity recorded on >1 occasion, consistency was over 90% in all data sets except for HES inpatients. Combining CPRD and HES increased completeness to 97%, with 85% of patients having the same ethnicity recorded in both databases. CONCLUSIONS: Using CPRD ethnicity from 2006 onwards maximizes completeness and comparability with the UK population. High concordance within and across NHS sources suggests these data are of high value when examining the continuum of care. Poor completeness and consistency of A&E and outpatient data render these sources unreliable.
    Authors
    Mathur, R; Bhaskaran, K; Chaturvedi, N; Leon, DA; vanStaa, T; Grundy, E; Smeeth, L
    URI
    http://qmro.qmul.ac.uk/xmlui/handle/123456789/13888
    Collections
    • Centre for Primary Care and Public Health [1626]
    Language
    eng
    Licence information
    © The Author 2013. Published by Oxford University Press on behalf of Faculty of Public Health. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/3.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
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